- Fibromuscular Dysplasia International Registry
Have you been diagnosed with Fibromuscular Dysplasia?
Doctors at Massachusetts General Hospital are participating in a registry to try to
understand more about Fibromuscular Dysplasia by collecting information from subjects
who carry this diagnosis. Subjects enrolled in this registry will participate for five years,
during which time we will collect information put into their medical record during their
routine visits for their FMD.
If you have questions about this registry or are interested in participating, you should
contact Dr. Michael Jaff, the Principal Investigator or Debbie O'Shaughnessy, R.N., the
Research Nurse. We are available to provide you with additional information regarding
this study. Please call (617) 726-3057 or e-mail doshaughnessy@partners.org.
Doctors at Massachusetts General Hospital are participating in a registry to try to
understand more about Fibromuscular Dysplasia by collecting information from subjects
who carry this diagnosis. Subjects enrolled in this registry will participate for five years,
during which time we will collect information put into their medical record during their
routine visits for their FMD.
If you have questions about this registry or are interested in participating, you should
contact Dr. Michael Jaff, the Principal Investigator or Debbie O'Shaughnessy, R.N., the
Research Nurse. We are available to provide you with additional information regarding
this study. Please call (617) 726-3057 or e-mail doshaughnessy@partners.org.
Institution – MGH - Massachusetts General Hospital, Boston, MA
Principal Investigator – Michael R Jaff, DO
Enrollment Information
For further information about enrolling a patient in this trial, contact the person below.
Name – Debbie J O'Shaughnessy, RN
Email – doshaughnessy@partners.org
Phone – (617) 726-3057
